I find that when I am up, doing something – seated or walking about – I hope your health is continuing to improve. This field is for validation purposes and should be left unchanged. After a few months, bone and muscle aching fatgue requiring bed rest returned. It turns out that there is an oxygen therapy centre about 40 minutes drive from my home in Northern Ireland.
If I get 4.5 hrs of sleep at night I know to plan extra
Far more effective than resting lying flat with eyes closed feeling like I might die and worried that I won’t.
Also I am a very stubborn person – once I have made up my mind to do something, I will achieve it. You will be amazed..Dont stress.
Cort you suggested Xafaxin as a sub for Desmopressin.
My husband was trained to help me use it and keep watch when I am in it for an hour at pressure.
With the postgraduate stuff behind me I decided to get my mind and body in better shape (did I mention that I lived with chronic anxiety?).
To recover I need to simply be patient and very careful for some weeks and often months before I can recognize that I am back to the level I was pre-relapse. This was only possible because I walked for two years prior. oooohhh…reduced lactic acid burn…boy, that’s right up my alley…is nortyptyline…’antidepressant'(kind of hate that term since they do so many other things), sleep med? Avoud all toxic substances. Good conversation.
Finding a good knowledgable physician is important. 8. if lactic acid build up causes pain/Fibro symptoms/swelling, gentle yoga/stretching in bed until loosened up and then pain releases – lactic acid moves on finally and body feels a million times better. Does sleeping in a bed set at a normal body temp interfer with that natural drop of body temp and release of the chemical seretonin?
I’m very slowly inching out of my latest flare-crash, due to overstimulation and stress. But i don’t care i am recovering.
Attending a child’s school event may leave someone house-bound for a couple of days and not able to do needed tasks, like laundry.
Drink plenty of hydrating fluids. I will try the points system that you have outlined here, as it’s methodical and that works for me. 2. high sodium first thing in day, 4-5,000mg/day Taking a shower may leave someone with ME/CFS bed-bound and unable to do anything for days. share. They watch me, and remind me to take it easy.
Well, because is viral, I will take Labolife 2LEBV which was the homeopathy remedy that worked for me in the past for lowering the titer of EBV. The symptoms we all know of CFS. I have tried to start back on either one-but Heart rac ing starts badly. Diane, “I use a My Zeo head band to monitor my sleep – it tells me how much sleep and time in each stage.
appreciate that I am alive, I will have some experience that is better in the future, etc. MS patients also use this. Saving Lives, Protecting People, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Centers for Disease Control and Prevention, National Center for Emerging and Zoonotic Infectious Diseases (NCEZID), Division of High-Consequence Pathogens and Pathology (DHCPP), Symptoms and Diagnosis of ME/CFS in Children, Diagnosis and Treatment of ME/CFS Syndrome: A Systematic Review of the Evidence, Presentation and Clinical Course of ME/CFS, Factors Complicating the Diagnosis of ME/CFS, Treating the Most Disruptive Symptoms First and Preventing Worsening of Symptoms, Additional Strategies for Living with ME/CFS, Monitoring the Use of All Medicines and Supplements, Understanding History of Case Definitions and Criteria, U.S. Department of Health & Human Services.
At this point Im in “unknown land” and its completely unpredictable for me how long this crash (rather then just “crashing”) state may continue for (Im currently in a crash like this which may of completely changed my “base line” .
It triggers the nervous system and adrenals. Rich) – no simple answer and no simple full recovery until the underlying pathologies are fully known and understood. It is called Hyperbaric Oxygen Therapy http://www.oxygentherapycentre.co.uk I have been in touch with them and have decided to give it a go!
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